Monday, May 04, 2009

Endometriosis - Another Painful, Hidden Illness - You Can Help

Endometriosis is a serious, incurable, painful disorder that affects approximately 5.5 million women and girls in North America alone; an estimated 89 million women world-wide. It's another example of an invisible illness, and suffers even more stigma for being a 'women's reproductive issue'. But women are the backbone of our society, the world's greatest untapped resource, and make up over 50% of the population. They are the shoppers, the people that make the economy go 'round. They are the mothers, the ones that raise our children in hopes of creating a better world. It is a difficult job in the best of circumstances, let alone with chronic pain and other symptoms. Please sign the petition for Endometriosis Awareness and help our mothers, daughters, sisters and friends around the world have their voices heard, have their welfare cared for, have their research done, and cure found.

There are medical interventions that may help the symptoms of endometriosis, but there is no cure. In many cases, dangerous and risky surgery is the only option for treatment, and it is never
guaranteed to work. Endometriosis not only affects the women who suffer the pain, but also their families. It makes sex painful, a symptom that is often experienced as shameful, an is a major thorn in important relationships with significant others: it can block communication with fathers, brothers, sons and friends, let alone spouses and boyfriends. Endometriosis can stand very much in the way of intimacy. Due to infertility, having children can be challenging, risky and expensive, if not impossible. The pain can be disabling and wreak havoc on women's home lives, careers and volunteer work. Endometriosis can take away women's lives and dreams.

You can help! It takes only a minute to sign the Endometriosis Awareness Petition, and you can sign anonymously if you wish. This petition is exceedingly important, not only for those who suffer from Endometriosis, but for their families, friends and loved ones, for those who do not yet suffer but will in the future, and for all of us with invisible chronic illnesses. The more
ICI's that are truly recognized and made priorities, the better it is for everyone, for our society, for humankind. It takes only 60 seconds to help. What better way to spend a minute than to help 5.5 million women in North America, their loved ones, and millions more across the planet.

Endometriosis is not even recognized as a word by popular spell-checkers. I find that pitiful, don't you? Help us change it.

The Endometriosis Awareness Petition

For More Information:
(also see links within article text - each
Endometriosis link leads to a different site)
Jeanne's Endo Blog - campaigner for Endo Awareness, founder of petition
Endometriosis UK

Endometriosis Blogs:
these blogs are fantastic sources of information as well as personal stories of courage and inspiration
Facing the Battle Head-On
The Silent Life Sentence
Living With Endometriosis
Yaya Stuff
Jeanne's Endo Blog

An Addition to the Procrastination Equation

Okay it's been twelve hours since I got up intending to write this post, so I don't know if I'll remember much of what I wanted to say, but I remember the essential bit. And that is, there's another element that was missing from my equation to explain my procrastination/paralyzation. And that's this:

c. 'what's the point?'

And this may be just or more as important than either a) guilt or b) rebellion.
I thought I'd gotten past the point of what's the point in my life, seeing as how I don't think I'm depressed anymore. But what's the point (WTP - not to be confused with WPT - the World Poker Tour) is an existential question that can exist and thrive without having a depression to feed it.

I was waking up this morning, and probably thinking of something I should/want to do (the distinction doesn't matter here) and I must've thought, "what's the point?" and then, being mindful even in drowsiness (which is awesome, and shows that intention works), I noticed the thought. What's the point of doing anything is a question I've asked myself a lot in my life. Nowadays, usually the point is helping people or for my health. Which brings us back to what else is there that makes life meaningful, and why I can't find anything meaningful in my life if I'm not helping people. Helping people can mean a lot of things to me - from just putting something out there that I think might wake someone up a bit, to sharing my experiences in hopes somebody else won't feel alone, to babysitting my friends kids or carrying somebody's bag. What's the point of doing something just for me, that isn't going to make me healthier? I mean the question of why do anything at all is still there, but I've answered that well enough for myself at this time.

Answering a why with a why not works sometimes, but not in this case. I only have so much time and energy and spending it on doing something that isn't going to make me healthier or help somebody else seems like a waste. Why, though? What is it that allows other people to see nothing wrong in indulging in 'selfish' pursuits? Yes, it increases happiness, but so can doing other things that may have some other benefit. Writing, for instance, is just as expressive, fulfilling and creative as making jewelry, but it also serves a bigger purpose. What purpose does it serve to make jewelry? What can my jewelry do for mankind? I feel my writing is much more valuable.

So what's the point? I don't know. I'm going to have to sit with this one and come back to it.

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I sometimes write things that I don't really mean or believe. These are not to be taken literally, nor as definitive statements about me or my beliefs. Thoughts and emotions are transient, and I reserve the right to change my mind, generalize, exaggerate, give strong opinions, or write other possibly offensive statements. I don't lie, but I may say something that's not true to check whether I believe it or not, or to make a point. Call it creative license. This is my blog, and do have the right to say what I want. I'm using it in creatively therapeutic ways. Whatever the reader may think of me and my words, please believe that my core intentions are always good and I never willingly hurt anyone.